To help you and your patients get the most out of your time together, AHRQ offers these free resources that you can use with your team and share with your patients. Our systematic review identifies 27 strategies for patient and family engagement in collaborative care. They will first be provided information about the project and its goals. We will develop PubMed and CINAHL searches using a Boolean combination of search strings and terms for patient/consumer/caregiver/family engagement (i.e. Guided by the PRISMA-P reporting guidelines [26], this review will include the following steps [27]: (a) identifying the research question, (b) identifying relevant studies, (c) study selection, (d) critical appraisal of studies, and (e) synthesizing and interpreting the results. Differing viewpoints are expected, and all statements are crosschecked against available literature and statements from other Key informants. This card helps patients record important information they receive during medical appointments. Shared planning and decision making. Patient engagement has become a cornerstone of quality of care [1,2,3,4,5,6] and is a frequently stated goal for healthcare organizations.Traditionally, and most commonly, this engagement has focused on the relationship between patients and providers in making care decisions or how to improve patient efforts to manage their own care [].However, there are growing efforts to integrate patients . Strategies for Patient, Family and Caregiver Engagement The specific objectives of this review are to: This systematic scoping review will allow us to determine the extent, range, and nature of research activity related to initiatives designed to promote patient and family engagement in care. Honest and clear communication. Patients can use this list of questions to take active role in their health care. This scoping review will contribute to the development of an evidence base detailing that the BCTs have potential to be effective in patient and family engagement interventions. The Technical Brief will summarize the evidence on patient and family engagement, provide a conceptual or organizational framework to understand key components of the strategies and interventions of interest, highlight evidence for innovative strategies, describe barriers to implementation, and provide guidance regarding future research directions and priorities. For abstracts without adequate information to determine eligibility, we will retrieve the full text and then make the determination. Guide for Developing a Community-Based Patient Safety Advisory Council Results Two-group path analyses revealed significant links between patient-perceived provider cultural sensitivity and adherence to provider treatment regimen recommendations, with some differences in associations emerging by race/ethnicity. Table 3. Telephone: (301) 427-1364, Engaging Patients and Families in Their Health Care, https://www.ahrq.gov/patient-safety/patients-families/index.html, AHRQ Publishing and Communications Guidelines, Evidence-based Practice Center (EPC) Reports, Healthcare Cost and Utilization Project (HCUP), AHRQ Quality Indicator Tools for Data Analytics, United States Health Information Knowledgebase (USHIK), AHRQ Informed Consent & Authorization Toolkit for Minimal Risk Research, Grant Application, Review & Award Process, Study Sections for Scientific Peer Review, Getting Recognition for Your AHRQ-Funded Study, AHRQ Research Summit on Diagnostic Safety, AHRQ Research Summit on Learning Health Systems, National Action Alliance To Advance Patient Safety, Guide to Patient and Family Engagement in Hospital Quality and Safety, Guide to Improving Patient Safety in Primary Care Settings, About AHRQ's Quality & Patient Safety Work, For Patients and Families in the Hospital, For Patients and Families in the Medical Office, For Patients and Families in Ambulatory Surgery Centers, CUSP ToolkitPatient and Family Engagement Module, Communication and Optimal Resolution (CANDOR) Toolkit, Guide for Developing a Community-Based Patient Safety Advisory Council, Medications at Transitions and Clinical Handoffs (MATCH) for Medication Reconciliation, Making Informed Consent an Informed Choice: Training Modules for Health Care Leaders and Professionals, Taking Care of Myself: A Guide for When I Leave the Hospital, Staying Active and Healthy With Blood Thinners, Blood Thinner Pills: Your Guide to Using Them Safely, Guide to Improving Patient Safety in Primary Care Settings by Engaging Patients and Families, Improving Your Laboratory Testing Process: A Step-by-Step Guide for Rapid-Cycle Patient Safety and Quality Improvement, The Toolkit for Engaging Patients To Improve Diagnostic Safety, The Toolkit to Engage High-Risk Patients in Safe Transitions Across Ambulatory Settings, Be More Involved In Your Health Care: Tips for Patients, Patients and Providers Discuss Importance of Asking Questions, Toolkit To Educate and Engage Residents and Family Members, Patient and Family Engagement in the Surgical Environment, Getting Ready for Your Ambulatory Surgery, Patients and Providers Discuss theImportance of Asking Questions, Privacy and RelatedConsiderations for Patient Safety and Quality Improvement Activities, U.S. Department of Health & Human Services. The patient representative participated in the initial identification of the research question and will be a full partner in all aspects of this scoping review. Guide to Improving Patient Safety in Primary Care Settings by Engaging Patients and Families Telephone: (301) 427-1364, Powered by the Evidence-based Practice Centers, Strategies for Patient, Family and Caregiver Engagement, https://effectivehealthcare.ahrq.gov/products/family-engagement/protocol, Comment on Key Questions and Draft Reports, 25 Years of the AHRQ Evidence-based Practice Center Program, https://www.urban.org/sites/default/files/publication/25191/412525-Summary-Will-the-Affordable-Care-Act-Move-Patient-Centeredness-to-Center-Stage-.PDF, https://innovation.cms.gov/initiatives/comprehensive-primary-care-initiative/, https://www.kentuckyrec.com/wp-content/uploads/2017/10/02.-PCMH-Standards-and-Guidelines-2017-Edition-Version-2-9-30-17.pdf, https://www.ahrq.gov/sites/default/files/wysiwyg/professionals/, https://www.nichq.org/sites/default/files/resource-file/PFAC%20Toolkit.pdf, https://innovation.cms.gov/Files/x/cpci-patientfamengresource.pdf, http://www.ipfcc.org/events/seminars.html, Attention Deficit Hyperactivity Disorder: Diagnosis and Treatment in Children and Adolescents, Models of Care That Include Primary Care for Adult Survivors of Childhood Cancer, Impact of Community Health Worker Certification on Workforce and Service Delivery for Asthma and Other Selected Chronic Diseases, U.S. Department of Health & Human Services, Patient Participation[Mesh] OR patient participation[tiab] OR patient engagement [tiab] OR patient involvement [tiab] OR patient empowerment [tiab] OR patient partnership [tiab] OR patient activation [tiab] OR patient-activated [tiab] OR family participation[tiab] OR family engagement [tiab] OR family involvement [tiab] OR family empowerment [tiab] OR family partnership [tiab] OR family activation [tiab] OR consumer participation[tiab] OR consumer engagement [tiab] OR consumer involvement [tiab] OR consumer empowerment [tiab] OR consumer partnership [tiab] OR consumer activation [tiab] OR caregiver participation[tiab] OR caregiver engagement [tiab] OR caregiver involvement [tiab] OR caregiver empowerment [tiab] OR caregiver activation [tiab] OR patient context [tiab] OR patient capacity [tiab] OR patients capacity [tiab], Advisory Committees [Mesh] OR PFAC [tiab] OR patient council [tiab] OR patient committee[tiab] OR patient advisor [tiab] OR family council [tiab] OR consumer council [tiab] OR family advisor [tiab] OR advisory council [tiab] OR community advisory [tiab] OR Self-Management [mh] OR Self-Management [tiab] OR Self Management [tiab] OR Shared Decision Making [mh] OR decision making[tiab] OR decision-making [tiab] OR Speaking up [tiab] OR telemedicine [mh] OR Electronic Health Records [mh] OR Electronic Health Records [tiab] OR "Medical Informatics"[mh] OR "health informatics"[tiab] OR "mobile health" [tiab] OR "eHealth" [tiab] OR "digital health"[tiab] OR "smart phone"[tiab] OR "mobile app"[tiab] OR "mobile applications"[tiab] OR "mHealth"[tiab] OR "smartphones" [tiab] OR Patient Portals [mh] OR Patient Portals [tiab] OR Patient Access to Records [mh] OR Patient Access to Records[tiab] OR Opennotes [tiab] OR Health Literacy [mh] OR literacy [tiab] OR hospice [tiab] OR palliative [tiab] OR end-of-life [tiab] OR end of life[tiab] OR terminal care [mh] OR Palliative Care [mh] OR patient safety[tiab] OR decision support[tiab] OR Advance Care Planning [mh] OR Advance Care Planning [tiab] OR Advance Directives [tiab] OR peer support[tiab] OR social support[tiab] OR family support[tiab] OR healthcare professional support [tiab] OR patient navigator [tiab] OR Accountable Care Organizations[mh] OR Population Health Management [MH] OR Accountable Care Organizations[tiab] OR Population Health Management [tiab], ((Patient Participation[Mesh] OR patient participation[tiab] OR patient engagement [tiab] OR patient involvement [tiab] OR patient empowerment [tiab] OR patient partnership [tiab] OR patient activation [tiab] OR patient-activated [tiab] OR family participation[tiab] OR family engagement [tiab] OR family involvement [tiab] OR family empowerment [tiab] OR family partnership [tiab] OR family activation [tiab] OR consumer participation[tiab] OR consumer engagement [tiab] OR consumer involvement [tiab] OR consumer empowerment [tiab] OR consumer partnership [tiab] OR consumer activation [tiab] OR caregiver participation[tiab] OR caregiver engagement [tiab] OR caregiver involvement [tiab] OR caregiver empowerment [tiab] OR caregiver activation [tiab] OR patient context [tiab] OR patient capacity [tiab] OR patients capacity [tiab])) AND (Advisory Committees [Mesh] OR PFAC [tiab] OR patient council [tiab] OR patient committee[tiab] OR patient advisor [tiab] OR family council [tiab] OR consumer council [tiab] OR family advisor [tiab] OR advisory council [tiab] OR community advisory [tiab] OR Self-Management [mh] OR Self-Management [tiab] OR Self Management [tiab] OR Shared Decision Making [mh] OR decision making[tiab] OR decision-making [tiab] OR Speaking up [tiab] OR telemedicine [mh] OR Electronic Health Records [mh] OR Electronic Health Records [tiab] OR "Medical Informatics"[mh] OR "health informatics"[tiab] OR "mobile health" [tiab] OR "eHealth" [tiab] OR "digital health"[tiab] OR "smart phone"[tiab] OR "mobile app"[tiab] OR "mobile applications"[tiab] OR "mHealth"[tiab] OR "smartphones" [tiab] OR Patient Portals [mh] OR Patient Portals [tiab] OR Patient Access to Records [mh] OR Patient Access to Records[tiab] OR Opennotes [tiab] OR Health Literacy [mh] OR literacy [tiab] OR hospice [tiab] OR palliative [tiab] OR end-of-life [tiab] OR end of life[tiab] OR terminal care [mh] OR Palliative Care [mh] OR patient safety[tiab] OR decision support[tiab] OR Advance Care Planning [mh] OR Advance Care Planning [tiab] OR Advance Directives [tiab] OR peer support[tiab] OR social support[tiab] OR family support[tiab] OR healthcare professional support [tiab] OR patient navigator [tiab] OR Accountable Care Organizations[mh] OR Population Health Management [MH] OR Accountable Care Organizations[tiab] OR Population Health Management [tiab]), Filters activated: Publication date from 2015/01/01 to 2019/12/31, #4 AND Cochrane validated systematic review search, 6. EW developed and refined the search strategies in collaboration with DG and CH. Structured approaches to promote patient and family engagement in Community level interventions, including: Social support (rides to physician office, food banks), One-time education-only or information-providing intervention (e.g., providing a handout), Without 2-way interaction or ability for patient to ask questions (e.g., providing access to web-based educational program). Content last reviewed June 2023.
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